In the Beginning -- Four Years Out

Four years ago I had lost my voice.  Literally.


How does a psych patient get help without a voice?  Too many times shamed into silence, when I quit my therapist I went to a Chinese Practitioner who did energy work, so I wouldn't have to speak.  When I had no choice but to find a new psychiatrist, I had to whisper.

How does a preacher preach without a voice?  Too long in the dark night, I had nothing to say.  When the pension fund required I not work at all for a year as a condition of disability, it was a relief.


How does a writer write when the words disappear?  Again I had no choice but to return to the Chemistry Experiment, this time with Lamictal. -- They tell you all about this exceedingly rare rash.  Sure it could kill you.  But you just stop taking the med, the rash goes away.  Meanwhile, they forget to mention the very common side effect -- your words disappear.  I didn't complete a sentence for months, forgetting in the middle what I intended to say.  Four books languished on my laptop.

Prozac Monologues

But I am a psych patient.  I am a preacher.  I am a writer.  I need my voice.  Enter http://prozacmonologues.blogspot.com/.

Mirror Neurons - They Change Everything

Blow your mind in the seven minutes and forty-four seconds:



You just watched V.S. Ramachandran, Director for the Center of Brain and Cognition at the University of California Sand Diego, cross the mind/brain barrier in his description of mirror neurons.  These neurons, a subset of the command neurons in the frontal cortex, are the neurobiological basis for imitation, culture and empathy.  What we see another do or feel causes mirror neurons in our own brains to fire, so that we understand or feel the same.

This week's blogpost is published late because I kept trying to explain what mirror neurons explain.  They explain everything.

They explain why rich people are not as generous as poor people.  (That may get its own post soon.)  They explain why religious people give more than nonreligious people, more time, more money, more blood.  (My source for that one is sociological, not neurobiological.  So I may not blog it, though mirror neurons would explain it.)  They explain why people who own guns are more afraid than people who do not, and why people who watch tv overestimate the crime rate.  They explain pornography.  They explain Congress.

Fabulous People With Schizophrenia

People With Schizophrenia Who Recover

My guess is you don't know people with schizophrenia who have jobs, own their homes, are married and join clubs and congregations.  My guess is, even if you work in the field or volunteer in homeless shelters, you do not count among your friends, your real friends, the ones you invite to your house for dinner, anybody with schizophrenia.

My guess is you do not know that such a thing is possible.

Lionel Aldridge decided to change that.  Lionel Aldridge played defense for the Green Bay Packers and won two Super Bowl rings.  (Go Cheeseheads!)  He lost them when schizophrenia took his life out of control.  Literally, his ring fell off his hand; he couldn't find it in the gutter.

But he came back.  He got treatment.  He vowed that if he got better, he would not remain silent, so that other people with schizophrenia would know they are not alone, so they would know they could recover, and so you would know that, too.  His story is in this link.

Inductive Research

Schizophrenia -- Taming the Dragon

Imagine you have a dragon in the house.

It has been there a long time.  When it was little, you could hide it.  You knew your parents didn't like it when you talked about it.  So you guarded it as a secret for the longest time, even with its nasty habit of singeing your fingers.  But when the couch caught fire, they knew, and insisted you get help.

They want you to get rid of the dragon.  Some of them think you can.  Others think you can tranquilize it, and the couch will never catch fire again, and nobody need ever know you have a dragon in the house.

Iron Rule #1:  You cannot get rid of the dragon.  It is here to stay.

Missing My Friends With Voices


I sat next to the young man as he told his story in Peer to Peer.  Honestly, he scared me.  I was new to the loony world.  I was getting less scared of people like me (and through them, eventually less scared of me).  But I was still scared of people with schizophrenia.  And this one, especially.  The others had a grip.  My young man had missed a session or two, not yet stable, like, able to tolerate a large room with twenty people stretched around big tables.

He whispered.  They asked him to speak up, but the longer he talked, stretching the three-minute limit to ten or fifteen, the softer his voice got.  I strained to hear him.  I was the only person in the room who could.  The story rambled, hitchhiking around obstacles and through obscure events.  If he hadn't whispered, if I hadn't strained so hard to hear the words, I would have missed it.  I would have missed him.

It actually made sense.  There was a flow.  The connections were loose, granted.  But if I got in the canoe with him, I could ride the river as he paddled through his quest to make sense of it.

That was my introduction to the inner world of schizophrenia.  My life is richer for it.  Yours could be, too.

Caveat -- Mental Illness is Real

Untangling Redemption

Kelly Flanagan is a psychotherapist who blogs.  I think that is brave of him.  Most mental health professionals keeps a decidedly low profile online.  Boundaries, you know.

Flanagan not only blogs -- he puts it right out there.

[I have been sick as a dog this week, and will share him with you, instead of churning out my own stuff.  Thanks, Kelly, for doing the heavy lifting.]

Flanagan's blog is called Untangled, and his theme is redemption: Tell a redemptive story with your life.  Now.

Immediately, he is asking for trouble in this bizarre world where meanness has become the measure of ones Christianity, and all those Christian words are distorted to stand for the opposite of what they intend.

In this Orwellian world, (where entitlement means something to which you are not entitled) Redemption means that you have paid whatever price somebody else has decided you ought to pay in mental gymnastics and conformity to their way of life.

Flight of Ideas

Pride of lions
Fleet of ships
Host of angels...

Flight of ideas.

It's a lovely phrase.  Isn't that what ideas do -- fly?

I think so.  But evidently, not everybody.


A Visit from the Goon Squad

I was looking to meet new people in my new home town, and went to the library's book club.  The selection for my second meeting was Jennifer Egan's A Visit from the Goon Squad.  Sex, drugs, rock and roll, and, oh yes, suicide -- these characters were my tribe!  No, I haven't lived their lives.  More to the point, I have asked their questions.

I wasn't sure how Egan's characters would be received in this group of middle-aged and older women.  I didn't know the book club members yet, but they seemed pretty respectable.  Then again, I can seem pretty respectable, too.  I expected a lively discussion.

Nope.  No lively discussion.  No discussion at all.  They were so dismayed, they were speechless.  The librarian resorted to reading reviews.

Defending DSM-5 -- Sort Of

Good mental health reporting takes research, careful analysis, nuance and a whole lot of work.  And in the end, it doesn't sell newspapers.  Which is why you see so much bad mental health reporting, even where you thought you'd find better.


[I like to think that opening sentence explains why I post no more often than once a week.  I work to provide a quality product.  But that is for you to judge.]

The long awaited publication of the Diagnostic and Statistical Manual, Edition V has generated a blizzard of easy-to-whip-off articles with sensationalist headlines, just the thing for you to share on Facebook on a boring weekday afternoon, and get a nice Ain't it awful rant going among your friends when, really, you should be doing your life.

The Spectre of the Butterfly Net

Most of these articles follow the same tired theme, Psychiatrists are out to diagnose half the population, turning normal human conditions into mental illnesses, because they are in cahoots with the pharmaceutical industry to put the nation on medication.

These articles write themselves.  Pick any diagnosis that the DSM-V has dared to update from a work last revised nineteen years ago, add a quote from the disgruntled old man who was editor-in-chief of said nineteen-year-old document, which only barely tinkered with the 1980 edition anyway, plug in a statistic on drug sales, and there you have it.

Next, pick another diagnosis, substitute a humanistic psychologist for the disgruntled old man, and you are good to go with next week's article.

I, who love links, am not going to link to any of this trash.

Now I have my problems with the DSM.  But I do have some sympathy for its revisers, caught in the middle of a sea change, trying to update a system that will be tossed into the deep within the decade, and would have been already, if we spent any halfway reasonable amount of money on research.

For now I will do my own op ed piece and offer for your consideration the following assertion, based on my own experience in the system and reports of friends who have been at this a whole lot longer:

There are no psychiatrists running around on the streets, chasing toddlers with temper tantrums, trolling funeral parlors for grieving widows, whipping up business.  People!  There are not enough psychiatrists to deal with the loonies already identified.  They do not need you!

You don't get to see a psychiatrist and submit to trial by DSM until

  • denial
  • snapping out of it
  • hiding
  • behavioral modification
  • herbal remedies
  • and prayer

have not worked, and there is no choice but to go where you do not want to go, in the face of your drinking buddies who all tell you, You'd have to be crazy to see a psychiatrist.

Well, maybe you are.  Maybe you are on the knife's edge.  Be prepared to stay there a while longer.  It will take three months to get an appointment.  Longer, if you don't have insurance.

Seriously, they don't need you.

Diagnosis is Your Best Friend

Do you know anybody who has suffered for years with some unidentified illness, bouncing from doctor to doctor, treatment plan to treatment plan, feeling crazy and out of control, because there is no reasonable explanation for these vague, though debilitating symptoms that come and go, and your friend begins to think that you all think he/she is crazy and not really sick at all?  Lyme Disease, Fibromyalgia, TBI, MS, ALS, Lewy Bodys...

The day that person receives a diagnosis, even a difficult one, is a day of rejoicing.  Now he/she knows, can make plans, can learn about the illness, follow a course of treatment, maybe even find one that helps.

Diagnosis, if it is the right diagnosis, even if it is more serious than the previous diagnosis, even if you really, really don't like the diagnosis, is the first step toward recovery.

I mean, think about it.  If you get out of breath climbing a flight of stairs, do you listen to your friends tell you to rest mid-flight?  Or do you go to a doctor who might tell you that you have a blocked artery?  Is the doctor drumming up business?  Or is he/she saving your life?

Mental Illnesses are Made of Normal Experiences

Let's break out some dialectical thinking.  I know, it's hard.  That is why mental health reporters for USAToday and even the New York Times don't ask you to do it.  Prozac Monologues does ask you to do it.  But we can take it slow.

First, what is dialectical thinking?  It is when you hold two truths that seem to contradict each other in your mind at the same time.  Truth is not about either/or.  It is mostly both/and.

So our first statement is this:

Mental illnesses are made of normal experiences.  Everybody gets sad.  Everybody gets angry.  Everybody gets up in the morning sometimes and just can't get started on the day.  Everybody who walks by a group of scary people thinks they are saying bad things.  Everybody catches something out of the corner of the eye that isn't really there.  Everybody throws something against the wall.  Everybody persists in believing something that is false.  Everybody has an occasional impulse to jump off the bridge.

The symptom lists of the DSM are filled with behaviors that everybody does.

News Flash:  Us loonies inhabit the same planet as everybody else.

That is the first truth in our venture into dialectical thinking.  And it is the source of all those headlines about how the DSM is turning normal behavior into mental illness.  How is this for a thought -- mental illness really is not that weird after all.

The Suffering of Mental Illnesses is not Normal Suffering

But.  Here is the other statement to hold in your mind while remembering the first one:

There is a difference.  You get a diagnosis of some sort of mental illness when a whole lot of normal experiences and a whole lot of normal suffering pile up beyond your ability to function in a normal world.

That's it.  If you are not at the end of your rope, you do not have a mental illness.  Rather you are having a bad day, or week, or year.  If you are functioning well in the world, you do not make an appointment with a psychiatrist, and do not receive a diagnosis.  And the psychiatrist is just fine with that, because he/she doesn't have time to see you anyway.  The DSM is not about you, and does not try to be about you.  So leave it alone and let it help those of us who need its help.

When your loved one dies, you will not be diagnosed with depression just because you are going through a normal grieving process.  A normal grieving process looks like depression, but only on the surface.

If what you have is Major Depressive Disorder, then you don't go through a normal grieving process.  You don't think about your loved one; you don't remember the good times; you don't share those scandalously funny pokes in the ribs during the funeral; you don't cling to your sister; you don't even get mad at the person who deserted you by dying.  You just sit under a black cloud and think about how miserable you are.  So you do not get better, and -- get this -- you do not do normal grieving, until you get treated for your depression.

Grieving widows are in no danger from the DSM, if their grieving really is normal.

When your child throws a temper tantrum, you don't run out for a diagnosis of Disruptive Mood Dysregulation Disorder.  A badly behaved child has good days and bad days.  If the parents are consulting with school and other resources and genuinely working on the issue, things get better.  When they have tried every recommendation in the book, when they fear for their lives, when the child is out of control and scared and miserable about his/her own behavior, and this has gone on for years...

then it is insulting, it is cruel and it is simply not helpful to tell these parents that there is nothing wrong with their child and that the doctor's attempts to figure it out are part of some grand conspiracy that threatens to medicalize normal behavior.  If you don't know, if you have not walked in their shoes, then shut the hell up.

Naughty children are not diagnosed in the DSM, if they can get better without it.

Diagnosis of Mental Illness is Not Easy

The DSM V does not make diagnosis easier.   Yeah, well -- diagnosis of any sort got more complicated when they threw over the four humours theory.

There is more to say in the DSM's defense.  I will get to it.  It will make me work and make you think.  And I don't imagine you will share it on Facebook.

Oh well.  My ad revenue never did pay the mortgage.

flair from Facebook.com

The Brain on Tetris

What happened to that hour?  That other hour?  The one after that?  Where did they go?

My son's best friend from childhood, whom I haven't seen in ten years, sent me a message with this link to a BBC story, The Psychology of Tetris.  When he saw it, did he remember that I used to ask my son to hide the Gameboy?

More Guns = More Suicides


Compare states to states.  Compare regions to regions.  Compare states within regions to other states within the same region.  Compare people of the same age group, in any age group, men to men and women to women.  Compare unemployed people to unemployed people, working folk to working folk.  Compare city dwellers to city dwellers, country folk to country folk.

Compare people with depression to other people with depression; people who are suicidal to other people who are suicidal; people who have a plan to other people who have a plan; people who have a past suicidal attempt to other people who have a past suicidal attempt, for God's sake!

More Guns = More Suicides.

Get it?

Homicide and Firearms - Some Facts

While I was researching this post, a Facebook friend posted this  picture.  I commented, giving information I discovered and found surprising.  The stats are below, under domestic violence.  A friend of my friend then commented, Dearest Willa......useless, worthless statistics.  Lies, damn lies and statistics.  Go back to class and learn forgiveness, and while you're at it....drop dead!

Well.  That was disturbing.  To my knowledge, I do not know the person who called me Dearest Willa, said I need to learn forgiveness, and then told me to drop dead.  It occurs to me that facts have power, if they evoked this response.

My facts come from the Centers for Disease Control, Bureau of Justice and Federal Bureau of Investigation, from reports and data bases that count people who died and how they died.  That is all these sources did -- they counted.  They made no policy recommendations.

I make no policy recommendations in this series, either.  I am reporting their numbers.  I do hope they are not useless numbers.  I offer them to you to help you weigh the costs and benefits of gun ownership.

How Many Killed Since Newtown?

Technical difficulties have delayed my research on homicide and firearms.  I can't figure out how to make the story not tedious.  So I will skip it.  Maybe next week...

Until then, here is a resource to keep you up to date.  Slate Magazine and the Twitter feed @GunDeaths are crowd sourcing data to answer the question:

How Many People Have Been Killed by Guns Since Newtown?

The answer is not easy to find.  Coroners do not publish this information in real time.  Perhaps you noticed that my statistics last week were from 2009 and 2010.  The tally is collected only at the end of the year, and it is not official for some months after.  Suicides, in particular, are underreported, even in official statistics.  They get caught up in investigations that take months beyond the reporting date.  Eventually the numbers for 2011 will be corrected, when these investigations are completed.  Meanwhile, the smaller number has been published in places that will not be corrected and will nonetheless be repeated (including Prozac Monologues, if I try to publish the most current sources.)


Guns and Death, Death and Guns

I have a friend, a young mother of two toddlers, whose New Years resolution is to get her license to carry.  This series is for her.  Live long and prosper, dear one!

My Next Series -- Facts About Firearms

I have a plan.  No, not that kind of plan.  Well, yes, I do.  But that is not the plan I mean right now.  I plan to do a series about firearms.  It is my intent to provide facts, just facts.  There are a lot of facts out there about firearms.  A lot of nonsense is disguised as facts.  But genuine facts are available, and more useful than our impressions for making sound decisions.

I am not going to write about my opinions about firearms, because, well really, who cares about my opinions.

Keeping Track of How People Die

Firearms are a cause of death, which means that the US Centers for Disease Control keeps track of them.  Wait, wait -- it doesn't keep track of the firearms, just the deaths.

Best of 2012 - Which Do You Choose?

Healthline.com is sponsoring a Best Health Blog of 2012 Contest, and Prozac Monologues is one of the contestants.

Click on Best of 2012 to vote Prozac Monologues the Best Health Blog of 2012!  The list is long -- find Prozac Monologues alphabetically.  You can vote every day until February 15th.  The contest started on December 21, so I am behind on the multiple vote front.  Tell your Facebook friends!  Tell your neighbors!  Tell the people using their SmartPhones at the coffee shop!  I guess you have to use a Facebook or Twitter account to cast your vote.

Meanwhile, I went back to look over my own work for the year, and invite you to do the same.  Click on the word comments at the bottom of the screen to weigh in on what you think of this body of work, or any particular piece of it.

Favorite Post

Judging by page views, the Popular Vote far and away goes to Dopamine - Can't Live Without It from March 23, 2012.  Coming in the middle of a series on the Stages of Change approach to changing the way we eat, this post traces the brain circuits that brought you from your grandma's cocoa to your daily Starbuck's habit, or from The Cocoa That Ate Your Brain to Pimp My Cocoa.

Trip the Light

I have noticed, people who are buying more guns seem to be more scared than the rest of us.  It is about pattern formation, the anterior cingulate cortex.  It can be your friend, or it can be your enemy.  Come on, people.  Have you forgotten Christmas so soon?  We can do better.  Like Matt here --



If all the days that come to pass
Are behind these walls
I'll be left at the end of things
In a world kept small

Travel far from what I know
I'll be swept away
I need to know
I can be lost and not afraid

Ring The Bells That Still Can Ring

Liturgical Christians, Catholics, Lutherans, Episcopalians keep a season called Advent, four weeks before Christmas.  It is a difficult practice, because it calls us to be thoughtful.  Thoughtful?!  You mean making a list and checking it twice?  No.  Advent is a time to acknowledge the truth that we hide from, behind our shopping lists and party schedules, the truth of emptiness and brokenness, in ourselves and in the world.  We are surrounded by Ho Ho Ho.  Advent says Hmm.

Advent says, Yes we will rejoice, because the baby, The Baby is born.  And yet.  And yet...

This has been a hard week.  Our defenses against the darkness have been found wanting.  And yet.  And yet...



Prozac Monologues Goes to the Movies

This is not a regular post.  It is a call for your help to create a future post.

Periodically, Prozac Monologues goes to the movies.  This time, I want to do a piece on spirituality at the movies.  It will feature half a dozen titles, each with a short descriptive blurb and a couple prompts for pondering and/or discussion.  Maybe your support group or book club or Bible study could use the suggestions to mix it up a bit?

Here is an example:

Groundhog Day: Self-centered weather caster, played by Bill Murray gets caught in a time warp, reliving one day over and over and over and over.  The only thing he can change is himself.  What is the life worth living?  How do we get stuck in a life that isn't?  Where do we find the power to change?

Power, grace, forgiveness, redemption, hope, dignity, the meaning of life, the universe and everything -- What are the stories that help you think about these things?

Put your suggestion in the comments.  Whether it is included will depend on the number of suggestions received, whether I understand it, and whether it fits what goes on at Prozac Monologues.  Looniness is appreciated, though not required.  Deadline for inclusion: December 31, 2012.

Thanks!
image of popcorn from FreeDigitalPhotos.net
dvd cover from Amazon.com

More on Mood Charts

This is my personalized mood chart.


You can find a larger and clearer image here. It was inspired by the one my mental health insurance provider sent me when I began taking mood stabilizers. Last week I described how their chart works and how people with mood disorders benefit from using any of the great variety out there.

Cigna's chart primarily tracks mood. Using theirs, I learned that lamotrigine made a difference to the course of my symptoms. After years of inappropriate prescriptions of antidepressants, I had moved to rapid cycling. No, rapid cycling means several cycles in a year. More like, I was spinning, from the depths of depression to raging agitation within each week, week after week. Lamotrigine did modify that pattern. It stretched the cycles, down from four to two a month. By recording the pattern, eventually I concluded, and I had the evidence to support it to my doctor, that the costs of the medication (dizziness, fourteen hours of sleep and grogginess a day, losing words) outweighed the benefits.

More Than Mood

But Cigna's chart was missing vital information. Mood dysregulation was only part of my experience. It was the agitation, sense of urgency, poor concentration, lack of sleep that put me on the disability roles. And, I began to suspect, these disturbances in energy levels were driving my suicidal thoughts as much as my depression was.

Mood Charts Revisited

Mood chart is one of the top search terms that bring people to Prozac Monologues. I wrote about mood charts in July, 2010, first as a recovery tool and later as a way to illustrate the differences between various mood disorders. Both posts promised sequels, promises that remained unfulfillable until now that I have spent several months doing cognitive remediation at Lumosity.com. Maybe cognitive remediation is worth another post -- later.

Following last week's tale of misdiagnosis and mistreatment, this week's long delayed return to mood charts seems timely.

What is a Mood Chart

Anniversary - Prozac Monologues

Do you take antidepressants for depression and you are not getting better?  Do they make you agitated, anxious, insomniac?  Have you heard it often takes a while to find the right med, so you keep trying, you brave little soldier, you?

My friend, today you tapped your ruby slippers together, and Google brought you here.  Maybe not to your home, but to mine.  What follows is the back story to Prozac Monologues.  But first things first:

Stop.  Stop trying.  Go no further until you have taken the MDQ, Mood Disorder Questionnaire, right here at this link, and have asked a friend or housemate who knows you really well and loves you enough to tell the truth to fill it out for you, as well.

Holiday Shopping for Your Favorite Loony

Personally, I would rather stick a hot poker in my eye than go out on Black Friday.  But at reader request, I am reposting the following from 2009 -- reformatted, since I started using more images some time back, and updated in random places.

For all you who want to be part of the madding crowd, and even those who will be waiting for the dust to settle, start here for your mentally interesting friends and relations:

Holiday Shopping for Your Favorite Loony -- November 24, 2009

The Day after Thanksgiving, traditional start of the Christmas, Hanukkah and Kwanzaa shopping season is upon us.  You Hanukkah people better start cracking!  It is Prozac Monologues' attempt to be ever helpful to my dear readers.  As my therapist says, Virgo -- your destiny is service.  Get used to it.  (I have a therapist who says stuff like that.  The following is a holiday shopping list to guide normals who want to please their loony loved ones.

Holiday Survival Tips for Loonies


People are already googling prozac and holidays and bipolar and holidays.  This is excellent.  You are following your therapists' advice to reduce your anxiety by thinking through your triggers and how you will handle them.

So as a public service to my readers, I repost a slightly editted Holiday Survival Tips for Loonies from November 20, 2010:


Ah, the holidays!  Time when far flung family members travel home and grow close around the turkey table.  Time to renew friendships in a round of parties and frivolity.  Time to go crazy?

No Pink Ribbons - On Truth-Telling

I don't do the pink ribbon thing.

I was sitting at a sushi bar, watching a football game last month, and noticed the pink shoes and towels sported by both teams.  I mentioned that October was Breast Cancer Awareness Month.  Our server said he didn't know that, but pink is his signature color.


Okay, I think the Man Enough to Wear Pink phenomenon in football and Tough Enough in rodeo's version is way cool.  And a sweet young man in Idaho who owns that pink is his signature color would have to be More Man and More Tough than most.

But as a movement to define the struggle against breast cancer -- I couldn't put my finger on it, but something always seemed a little off.

Elections and Mental Health

Full disclosure: I am a Christian.  Every baptism I attend, I renew my vow to follow and obey Jesus Christ as my Lord and Savior.  When I was ordained a priest, I made another vow, to pattern my life in accordance with the teachings of Christ.  So that I don't just make it up as I go along, I also vowed to be diligent in the reading and study of the Holy Scriptures.

I'm telling you -- I'm serious about this.

Just so you understand -- that means I am a Christian first, an American second.

When I vote, my faith determines my vote.

In my reading of the Holy Scriptures -- and I read it a lot, and I read the whole thing, and keep reading it to catch things I missed the first and second and twentieth time round -- it is very clear.  According to Jesus and the prophets, a nation will be judged not by the private morality of its citizens, but on how the nation itself treats the most vulnerable in its midst.

When I vote, I am voting for policies that determine how my nation will be judged, because I believe this nation will be judged.  Since this is a democracy, as a citizen, I also bear some responsibility for what happens in this nation, and expect to share in its judgment.  So I am voting for people whose first priorities will be the hungry, thirsty, alien, poor, sick and those in prison.  Because those are the priorities on which we will be judged.  Matthew 25.  Got that?

So I am voting for mental health.  We throw around a lot of words, but behind these words are real people.  I know some of them.  Even if I didn't. I am commanded, by somebody I have vowed to obey, to do for them what I would have done for me.

Medicaid, veterans, parity, research, access to health care, including sufficient professionals to provide mental health services -- there is a lot at stake in this election.  Follow the link to NAMI's What's at Stake in the 2012 elections? for the details.  Then decide who you think has the same priorities as Jesus and the prophets.  I am not assuming anything here, just telling you where I stand.  Maybe you share these priorities, maybe you don't.  But figure it out.

And be honest about it.

Then go vote yourself.

clip art from Microsoft.com
icon of Christ Pantokrator, 6th c. St. Catherine's Monastery, Mount Sinai, in public domain

Pinky and the Brain

While I catch up on laundry from vacation, here's something to keep you little squirts happy.



And if you want the full tutorial, here is a new resource.  But no Pinky.

Hope for a Cure? Or Not?

But we have to keep hoping for a cure, don't we?

I spent six months preparing a power point presentation on stages of recovery and fifty minutes delivering it.  My co-presenters and I described the misery of the Chemistry Experiment, and the hope offered by other interventions that harness the brain's capacity to heal itself.  Medicine is a piece of the answer, but just not inadequate to carry the whole load of healing.

But DNA operates even deeper in an organization than in an individual.  NAMI was born out of the medical model, when parents who had been wrongly accused of causing their children's illness pushed back and insisted on their innocence.  Mental illness is not caused by distant fathers and overprotective mothers.  Mental illness is a physical illness.

Yes it is.  Whether it arises from chemistry, wiring or structure, it is an illness in the brain, a physical organ, inside a body.

Well, it was a short jump from that insight to the search for a cure, a medical cure.  Because that is what medicine does, it cures physical illness, right?

So there was that question, the NAMI parent's quest for a cure, in response to all our elegant talk about Recovery, the NAMI peer's quest for a life worth living.  Forget Recovery. Don't we have to keep hoping for a cure?

Neuroscience of Meaningful Work

Fourteen years ago, I was offered a new job, Missioner for Ministry Development.  What's that?  Sometimes I said, I consult with organizations undergoing paradigm shift.  Other times I said, I do what Paul did.  Depended on the audience.

The details don't matter.  What does matter is that I got up every single morning rejoicing at what I felt privileged to do that day.  I considered it the job I was born to do.


Well, yes and no.  It combined my burning passion for advocacy, my deep appreciation of small congregations, and my abiding love for the highways and byways of Iowa, Beautiful Land, as the native inhabitants called it.

On the other hand, it gave me intense fourteen hour work days, conflict with long time friends, people across the state who piled their hopes, dreams and desperations on my back and the resistance of those who value certain aspects of an institution that others can no longer afford.  When we mixed all that with second generation antidepressants -- Keep trying, the doctors and my therapist said -- my bipolar II went into hyperdrive.  I was both madly productive and plain old mad.  It was beautiful.  It was ugly.  It didn't last.

Ellen Frank says that people with bipolar need to deal with grief for the lost healthy self.  It's one of the interpersonal issues that sabotage our adherence to the regimen required to maintain recovery.

Stages of Recovery - AKA Hope

It gets better.  It really does.

People who get tired of the Chemistry Experiment go off their meds.  Why?  Because the meds don't work.  Or they make us sick.  And the doctor doesn't hear us, because the doctor has one tool in his/her toolbox.  [Hint: It's not an ear.]  And he/she thinks that the solution to our problem is compliance, because there isn't time for listening and problem solving.

When you walk into a hammer store, they will try to sell you a hammer.  Fair enough.  If you are trying to rebuild the life that your illness took from you, chances are you will need a hammer.  Chances are you will need some other tools, as well.

The doctor doesn't have those other tools.  But they are out there.  And so is the map.

You are angry that the meds promised what they could not deliver.  Get over it.  Pull out the map.  Or the toolbox.  Mixed metaphor.  Whatever.  Get over it.  Get to work on your recovery.

The Recovery Map

Recovery - From What?

Recovery is the individual lived experience of moving through and then beyond the limitations imposed by the disorder, by the world around us, and even by the treatment itself.

Huh?

Okay, the deal is, unless you know where you are going, it's tough to get there.

Recovery Defined as Escape from the Symptom Silo

The docs know where they want to go.  They want to get rid of your symptoms.  Your illness is defined by a list of symptoms, found in the DSM and measured by survey instruments, and when you score in the normal range, then you have recovered.

Which is sort of like saying that if you don't have chest pain or shortness of breath, then you have recovered from heart disease.  Cardiologists don't think that way.  They want to know the condition of your heart, not just your symptoms.

Recovery Redefined

 The Medical Model Failed

We got sick.  Well, we were already sick.  We sat in the doctor's office, while the doctor quizzed us about our behavior, sorting out where we belonged in the DSM's symptom silo.

Next the doctor enrolled us in The Chemistry Experiment, prescribed the chemicals that were supposed to reduce those behaviors.  Not fix our brains, mind you.  Nobody has been testing whether these chemicals fix our brains, just whether they change our behaviors.

Recovery - The Medical Model Continued

Last week I began scavenging my upcoming Mental Illness Awareness Week presentation Recovery: Rewiring the Brain for a series of blog posts.  I left you in the middle of the Medical Model.  The graphic is on the left.  The narrative left off as the person with the broken brain was reading the patient information sheet, gulped at that list of side effects, remembered the doctor said she should weigh her costs and benefits, and then discovered that, according to the patient information sheet, the doctor had already done the weighing for her, and all she had to so was swallow the damn pill.

The Chemistry Experiment

The way it actually happened was this.  The sixth antidepressant my doctor wanted to try, she said, I get really good results with this medication.

So I wanted to know, remembering the results I got from her last brilliant idea, or rather, from the samples she had just received from the last sales rep, What kind of results will I get?

Recovery - The Medical Model

My Latest Obsession Begins

It was a talk intended for a general audience.  Well, what was assumed to be a general audience.  Not many doctors attend the monthly meeting of NAMI Johnson County.  But some people in the room know a lot more about the brain, what goes wrong, why, what can be done and what really works than the average viewer of those Zoloft ads on TV.  We have to.  We have come to understand that our lives depend on it.

So when the new director of the psychiatry department explained it all, some of us caught the nuances, and squirmed in our seats.

What Is Recovery?

Seventeen Keys to Recovery

Margalea Warner is one of my partners, along with Carol Porch, for a Mental Illness Awareness Week presentation in October, Recovery: Rewiring the Brain.  Margalea is active in the Mennonite Church in Iowa City.  They have been supportive on her journey in recovery.  She says there were some years when she was hospitalized so often she bankrupted their flower fund!

This week I am reposting her recent contribution to ADNET, Anabaptist Disabilities Network.  Margalea's story is one of those lights I hold up when things get dark.  I hope it shines for you, as well.

Keys to Wellness and Friendship -- by Margalea Warner

On August 12, 2012, a group of my friends gathered at the home of my friend Becky for a celebration of two major life milestones.  My friend Sherry had achieved twenty-two years of being clean and sober.  I had reached the milestone of seventeen years outside the locked psych ward.

Is Recovery Possible? - Kayla Harrison Continued

A few weeks ago I published a video interview with Kayla Harrison, USA's first gold medalist in judo.  The story was dated before her win, and showed her determination: if not London, then Rio...  (The source is the Boston Globe.  Kayla didn't make NBC's radar screen until after she won.)

Lots of shots in the gym.  A young lady you wouldn't want to mess with.

Except, her former judo coach did, starting when she was twelve years old and for three years.

Today, her former coach is in jail, and she has her gold.

Well, of course we love this story.  It follows the USA's favorite narrative arc: misery, struggle, justice, triumph.  We will listen to this story, read this book, watch this movie every night of the week.

Some of us will ponder it a little longer than others.  I expect Kayla is one.

Get Over It, Already

The Positive Power of Being Strange


It's just too easy [in Iowa] to avoid the weirdos in our life.

First, the TED talk from one of those people who, whenever they have something to say, you want to pay attention to it. I am pleased to call Mike Wagner a friend, so I get regular doses. Here he doesn't use the language, but he's talking about the power of my favorite brain part, the anterior cingulate cortex.

Mike's shingle hangs at White Rabbit Group. The name itself tells you something. He calls it a brand altering experience.



Next, the Prozac Monologues take on the matter, a rerun from September 23, 2011

Differently Abled - More, Please

It's like he is in a world of his own. The first grade teacher, old school, same worksheets for the last thirty years, did not mean it as a complement.

Curiosity on Mars

And now for something completely different, the true origin of Curiosity's name?



Marvin the Martian looks at us, and observes, There is a growing tendency to think of Man as a rational, thinking being, which is absurd.  There is simply no evidence of any intelligence on the Earth.

Meanwhile, in case you missed it, NASA has landed a rover named Curiosity on Mars.  If you did miss it, then you might be curious about what called Marvin to my mind.  Curiosity has yet to meet Marvin.  It is, however, meeting a lot of rocks.  It doesn't seem to be enjoying the rocks.

Follow the twitter feed from the Martian Rover here.  (Keep scrolling to the bottom to find the beginning.)  I think Curiosity works better on Prozac Monologues than Bugs -- different chapters from the DSM, you know.  Three days, and it's already into isolation and suicidal ideation...

But if you must, here is NASA's version of events.  Obviously not yet hearing its pain.


Kayla Harrison Survives Her Way to Gold

She's calling me out of sabbatical.  Damn!  She's calling for a series.  I'll have more next week.



Note added on 01/02/13 -- Links to other posts in this series are below:

Is Recovery Possible? - Kayla Harrison Continued August 25, 2012 -- The judo champ's story introduces the concept of recovery.
Seventeen Keys to Recovery August 30, 2012 -- Guest blogger Margalea Warner describes her journey in recovery in schizophrenia.
Recovery - The Medical Model September 7, 2012 -- Introduces the doctor's agenda, covers the first half of the story.
Recovery - The Medical Model Continued September 14, 2012 -- It was a great idea.  If only it worked.
Recovery Redefined September 21, 2012 -- People with a mental illness have our own definition of recovery.
Recovery - From What? October 1, 2012 -- You have to know where you are going if you want to get there.
Stages of Recovery - AKA Hope October 5, 2012 -- We recover in stages, and need different tools for each stage.
Neuroscience of Meaningful Work October 10, 2012 -- Oh goodie!  Here come the dendrites!
Hope for a Cure? Or Not? October 18, 2012 -- We finish the series with questions left unanswered, like, What is a cure worth?

The Garden of Your Mind

Mr. Rogers does with the mind what last week's post with Carl Sagan, Jill Bolte Taylor, et al did with the brain...



Ode to the Brain

Something about this seems sacred to me.



Purple Heart for PTSD

I am pleased to have scooped NAMI and Fox News on this one by two years.

Some people say we have dumbed down PTSD, and that we dishonor the suffering of soldiers when we give the diagnosis of PTSD to people who have the same symptoms and same brain dysfunction of PTSD, but whose traumas were of a lesser severity.  In other medical departments, a broken leg is a broken leg, whether the person fell three feet or thirty.

Back in May, 2010 I proposed that the way to honor soldiers whose PTSD is the result of war injury is the way we honor any soldier wounded in war -- the Purple Heart.

Better yet, let's honor their sacrifice by preventing their trauma in the first place.  No more!

Meanwhile, check out Guitars for Vets.

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